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Crouch M: Medical Genetics and Law

Medical Genetics and Law

An International Perspective

Asia in Transition

This book traces the contours of the symbiotic relationship between crop cultivation and cattle rearing in India by reading against the grain of several official accounts from the late colonial period to the 1980s. It also skillfully unpacks the multiple cultural expressions that revolve around cattle in India and the wider subcontinent to show how this domestic animal has greatly impacted political discourses in South Asia from colonial times, into the postcolonial period. The author begins by demonstrating the dependence between the nomadic cattle breeder and the settled cultivator, at the nexus of land-livestock-agriculture, as indicated in the writings of Sir Albert Howard, who espoused some of the most sophisticated ideas on integration, holism, and mixed farming in an era when agricultural research was marked by increasing specialisation and compartmentalisation. The book springboards with the views of colonial experts who worked at imperial science institutions but passionately voiced dissenting opinions due to their emotional investment in the lives of Indian peasants, of whom Howard was a leading light. The book presents Howard and his contemporaries' writings to then engage contemporary debates surrounding organic agriculture and climate change, tracing the path out of the treadmill of industrial agriculture and factory farming. In doing so, the book shows how, historically, animal rearing has been critically linked to livelihood strategies in the Indian subcontinent. At once a dispassionate reflection on the role played by cattle and water buffaloes in not just supporting farm operations in the agro-pastoral landscape, but also in contributing to millions of livelihoods in sustainable ways while fulfilling the animal protein in the Indian diet, the book presents contemporary lessons on development perspectives relating to sustainable and holistic agriculture. A rich and sweeping treatment of this aspect of environmental history in India that tackles the transformations prompted by the arrival of veterinary medicine, veterinary education and notions of scientific livestock management, the book is a rare read for historians, environmentalists, agriculturalists, development practitioners, and animal studies scholars with a particular interest in South Asia.

Tracing the Pre-history of Green and White Revolutions

Critical Insights on Colonial Modes of Seeing Cattle in India (1850-1980)

Cambridge Bioethics and Law

Despite increasing global respect for disability rights since the 2008 entry into force of the UN Convention on the Rights of Persons with Disabilities (CRPD), the equal right to live in the world for disabled people continues to be undermined. This undermining stems from a range of factors, not least the selective prevention and termination of disabled lives, along with long-standing barriers to life-sustaining care, including restricted access to controlled substances and experimental treatment. Investigating the problem of disability discrimination at the margins of life and death, Tony Bogdanoski draws on a range of materials, including international human rights law, reports of UN treaty monitoring bodies and special rapporteurs, and laws largely from the US, UK, and Canada to explore how selective reproduction, assisted dying, and drug control impact struggles for disability equality. His insights are broad in consequence, spanning the fields of disability studies, human rights, law, and bioethics.

Confronting Ableism at Life's Margins

After Disability Rights

Perspectives in Law, Business and Innovation

Data sharing - broadly defined as the exchange of health-related data among multiple controllers and processors - has gained increased relevance in the health sciences over recent years as the need and demand for collaboration has increased. This includes data obtained through healthcare provisions, clinical trials, observational studies, public health surveillance programs, and other data collection methods. 
The practice of data sharing presents several notable challenges, however. Compliance with a complex and dynamic regulatory framework is essential, with the General Data Protection Regulation being a prominent example in a European context. Recent regulatory developments related to clinical trial transparency, trade secrecy, data access, AI training data, and health data spaces further contribute to the difficulties. Simultaneously, government initiatives often encourage scientists to embrace principles of "open data" and "open innovation."
The variety of regulations in this domain has the potential to impede widespread data sharing and hinder innovation. This edited volume, therefore, compiles comparative case studies authored by leading scholars from diverse disciplines and jurisdictions. The book aims to outline the legal complexities of data sharing. By examining real-world scenarios from diverse disciplines and a global perspective, it explores the normative, policy, and ethical dilemmas that surround data sharing in the health sciences today.
Chapter Patient Perspectives on Data Sharing, Chapter Supplementary Measures and Appropriate Safeguards for International Transfers of Health Data after Schrems II are available open access under a Creative Commons Attribution 4.0 International License via link.springer.com.

The Law and Ethics of Data Sharing in Health Sciences

Humanbiobanken und DNA-Datenbanken sind zu einer zentralen Infrastruktur der modernen Medizin und der genetischen Forschung geworden. Mit ihnen stellen sich grundlegende rechtliche und ethische Fragen. Wie weit reicht die informierte Einwilligung, wenn Proben und Daten über Jahrzehnte und für noch unbekannte Zwecke aufbewahrt werden? Wem gehören die gewonnenen Erkenntnisse? Wie lässt sich genetische Information vor Diskriminierung und Missbrauch schützen, und welche Rechte haben Gemeinschaften, deren Erbgut erforscht wird?

Dieses Werk beantwortet diese Fragen im internationalen Vergleich und auf dem Rechtsstand des Jahres 2026. Es untersucht die Governance von DNA-Datenbanken und Humanbiobanken in 38 Jurisdiktionen über alle Kontinente hinweg, von Deutschland und Europa über Nordamerika, Lateinamerika, Asien, den Nahen Osten und Afrika bis nach Ozeanien. Nach Großräumen gegliedert, stellt es die jeweiligen Rechtsgrundlagen, die maßgeblichen nationalen Genomprogramme und die ethischen Leitlinien einander gegenüber und arbeitet die unterschiedlichen Regelungsmodelle heraus, von der eigenen Biobankgesetzgebung über sektorale Ansätze bis zu den verschiedenen Souveränitätsdoktrinen.
Besondere Aufmerksamkeit gilt der informationellen Selbstbestimmung, der genetischen Diskriminierung, dem Benefit-Sharing und der Rolle treuhänderischer Modelle. Ein eigenes, übergreifendes Kapitel widmet sich der Stellung indigener Völker und der indigenen Datensouveränität. Den Abschluss bildet ein Ausblick, der unter anderem den neuen Europäischen Raum für Gesundheitsdaten einbezieht.
Das Werk richtet sich an Entscheidungsträger, Bioethiker, Mediziner und Forscher, an Verantwortliche in Biobanken, im Datenschutz und in der Wissenschaftspolitik sowie an alle, die sich mit der rechtlichen und ethischen Gestaltung der genetischen Forschung befassen. Es baut auf einem grundlegenden Werk der Autorin aus dem Jahr 2004 auf, ist jedoch vollständig neu bearbeitet, systematisch neu gefasst und wesentlich erweitert.

Rechtliche und ethische Governance im internationalen Vergleich

DNA-Datenbanken und Humanbiobanken

Philosophy and Medicine

This open access book is an integrated historical and philosophical investigation of several problematic situations that emerge from diverse areas of medical practice. These include (but are not limited to):


 Paying less attention to patients who are suffering with symptoms because no identifiable pathological lesion or pathophysiological process can be found.

 Paying too much attention to patients who are not suffering with symptoms because pathological lesions or pathophysiological processes have been found.

 The tendency to understand patients at risk of developing pathology as being diseased.

 The tendency to disregard the importance of wider societal consequences of definitions of disease and health.





The book shows that many of these problems are related to what disease and health are considered to be and argues that these problems can be addressed by reconsidering the concepts of health and disease employed in practice. It argues for a pragmatic reconceptualization of health and disease that allows clinicians, researchers, and lay people to understand health and disease in many ways, depending on the specific context in which they find themselves and the problems they are trying to solve. In doing so, authors are careful to show how this pragmatism does not endorse "silly" forms of relativism, in which knowledge is reduced to belief or to whatever people find expedient to believe. This work is relevant for philosophers and historians a well as for doctors, health policy makers and other health professionals because it addresses problems sourced from medical practice, albeit using philosophical and historical methods.

A Pragmatic Approach to Conceptualization of Health and Disease

In what way is 'care' a matter of 'tinkering'? Rather than presenting care as a (preferably 'warm') relation between human beings, the various contributions to the volume give the material world (usually cast as 'cold') a prominent place in their analysis. Thus, this book does not continue to oppose care and technology, but contributes to rethinking both in such a way that they can be analysed together.Technology is not cast as a functional tool, easy to control - it is shifting, changing, surprising and adaptable. In care practices all 'things' are (and have to be) tinkered with persistently. Knowledge is fluid, too. Rather than a set of general rules, the knowledges (in the plural) relevant to care practices are as adaptable and in need of adaptation as the technologies, the bodies, the people, and the daily lives involved.

Care in Practice

War is an engine of innovation. It has motivated extraordinary achievements in medicine and science, many of which have generated benefits far beyond the battlefield. These advancements, however, have come at great cost. Countless individuals have been exposed to hazardous research, often without their knowledge or consent. Cities, towns, and rural areas have been used as test sites for atomic, chemical, and biological warfare, causing widespread environmental damage and a myriad of health ailments in generations of Americans. Health professionals have been intimately involved in enhanced interrogation programs, while warfighters face an emerging scenario where biomedical enhancements may become essential elements of military missions. Laws and ethical codes have been rewritten to facilitate these endeavors and shield wrongful conduct from the public. Due to secrecy mandates, governmental immunities, and lackluster healthcare, many individuals harmed by these actions have been left without legal remedies or adequate means to address their injuries. America's Military Biomedical Complex shows how the drive for scientific and military superiority has shifted the moral compass of government and society, detailing scores of examples where untoward conduct has been rationalized as necessary to promote national security and achieve military goals. The book traces the fascinating story of how laws and ethical codes have co-evolved with the nation's military science pursuits, dating back to the founding of America. Without passing retrospective judgment, it explores the moral calculus conducted by decision-makers at key moments in military science. This analysis reveals that officials were keenly aware of ethical dilemmas, but nonetheless chose to engage in risky (and sometimes unlawful) activities to further pressing national security goals. Coupled with this historical reflection, America's Military Biomedical Complex recommends policies that harmonize contemporary national security concerns with fundamental principles of justice and human dignity. It introduces the concept of jus in praeparatione bellum (justice in war preparations) a doctrine of restraint and responsibility that aims to elucidate just and unjust means of preparing for war.

Law, Ethics, and the Drive for Scientific Innovation

America's Military Biomedical Complex

Throughout the world, in liberal states, it is common to use prenatal selection techniques and procedures which can prevent the birth of a disabled child. A common assumption is that this practice is driven by individual choice, and that the state itself is neutral. If instead the state was not neutral, this would raise fears of eugenics. The purpose of this book is to test this common assumption. While there is extensive literature on the ethics of selecting against disability, this book proposes a different starting point based on an analysis of the state's position. Through an examination of liberal theory, and a review of concrete examples of state practice, it sheds new light on our society's commitment to the equality of disabled people and the equality of women.

Choice, Equality, and the Limits of Neutrality

Selecting against Disability in the Liberal State

Dieses deutschsprachige Standardwerk deckt das gesamte Spektrum der Genetik ab, von der klassischen Formalgenetik bis hin zur Genomforschung und Gentechnologie. Die Themen reichen von molekularer Genetik, Chromosomenbiologie und Epigenetik über Entwicklungsgenetik, Neurogenetik und Verhaltensgenetik bis zur Humangenetik und Anthropologie. Komplexe Sachverhalte werden übersichtlich und verständlich dargestellt, während farbige Abbildungen das Verständnis komplexer Abläufe unterstützen. Das Buch bietet Grundlagenwissen für das Bachelor- und Masterstudium und wird durch Lernhilfen, anschauliche Beispiele und Übungsfragen ergänzt. Technikboxen vertiefen das Themen- und Methodenspektrum. In der 8. Auflage wurden die Inhalte umfassend überarbeitet und aktualisiert.

Die Autorin

Ann Ehrenhofer-Murray ist Professorin für Molekulare Zellbiologie an der Humboldt-Universität zu Berlin. Nach dem Studium der Biologie an der ETH Zürich und einem Postdoktorat an der University of California in Berkeley hat sie am Max-Planck-Institut für Molekulare Genetik gearbeitet und war Professorin für Genetik an der Justus-Liebig-Universität Gießen und der Universität Duisburg-Essen.

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Genetik

NomosTextbook

The textbook offers readers a clear and engaging entry point into the central questions of bioethics. It demonstrates how ethical principles such as autonomy, dignity, justice, and human rights can be applied to contemporary medical, technological, and social challenges. Through classical and modern case studies, it provides methodological clarity and argumentative confidence in addressing moral dilemmas - from patient autonomy and global justice to disability and aging ethics. The textbook is aimed at students, teachers, and professionals in philosophy, medicine, ethics, law, and public policy.

John-Stewart Gordon is Chief Researcher (full professor equivalent) at the Faculty of Social Sciences, Arts and Humanities, and Adjunct Full Professor at the Department of Applied Informatics, Faculty of Informatics, at Kaunas University of Technology.

An Opinionated Introduction

Bioethics

Towards Social Justice in Dementia Care

Relating to People Living with Dementia as Equals

Genesis

GENESIS: Letzte Hoffnung - Das Finale der Trilogie! Die Welt, wie sie einst war, existiert nicht mehr. Fünf Monate nach der Aktivierung von GENESIS stehen Dragica, Santiago und ihre Verbündeten vor dem endgültigen Kampf gegen Sol Invictus. Doch die Wahrheit ist dunkler, als sie je befürchtet hatten. Phase Null wurde entfesselt. Eine neue Form des Lebens, geschaffen aus der perfekten Fusion von Mensch und Maschine - unaufhaltsam, unkontrollierbar. Während die letzte Bastion der Menschheit fällt, bleibt nur eine Frage: Können sie GENESIS noch aufhalten, oder ist es bereits zu spät? Das epische Finale der GENESIS-Trilogie - rasant, unerbittlich, voller Spannung. Werden sie die Menschheit retten? Oder war es das Ende, bevor es richtig begann?

GENESIS - Letzte Hoffnung

Medical Genetics and Law

Autres titres sur ce thème